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EvanAdministratorFebruary 7, 2023 at 5:31 pm
HI I’m Evan, I’m one of the moderators, and one of the chronic pain support group leaders. I have had chronic pain for about a decade. One of the more prevalent issues I have dealt with has been chronic migraines for about 5 years. I’ve been on monoclonal antibody therapy to counter migraine episodes. lately, I have chosen to discontinue all medication, following a two week cluster headache sequence. After 8 months on my latest biologic injection (2nd one I’ve tried), I found myself getting worse, not better. While my headaches seem controlled off the medication (~3 months so far, and for the moment), I still suffer from insomnia, brain fog, and fatigue. I also have peripheral neuropathy, and often wake up with burning sensations and sore joints and muscles. Every day is a challenge. I’m lucky enough to be able to work when I can, and rest when I need to. I’m looking forward to hearing how everyone is doing and hope to build up this community with mutually supportive members, who are motivated to help support each other, and help build and better the value of the i-engage community !